This article is about death. This is not a pleasant topic for anyone. This is not something that should not be avoided and carefully planned for anyone with children – especially children with special needs.
In the past year, five local autism families have had a parent die suddenly. Any death can rock a family but an unexpected death can shatter the world of a child with autism, as even a simple change can be difficult.
In our community, we joke that parents of Autism Spectrum Disorder (ASD) kids are never allowed to die. We must live as long, or longer, than our children with autism to safeguard them. But we have to be realistic, that wish is just not going to happen.
Consider this – if you were hit by a bus tomorrow, what would people need to know about your child to care for him? What scares him? What comforts him? Whoever is going to take care of your child in your absence is going to need some information so they don’t have to guess and get it wrong.
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Timely and frightening. I am more fortunate than many. We have made our wills [a must] and set up a trust [ and executor] with guidance for the what if's. Yes, it is expensive, but it's not a question of choice.
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